Thursday, April 27, 2006

Living with Epilepsy

Keone has been on the Epilim for about 6 weeks now and we have noticed he has MORE "brain freezes" and they last longer than they did when he wasn't taking medication. So frustrating that you can't just go back to the Specialist....we have to wait 6 weeks to get back in to see him. Took the kids swimming during the holidays and ended up diving in and dragging Keone up from under the water as he had one under the water.....my hair is a new shade of grey! We always watch him like a hawk at the pool and he isn't allowed out of arms reach, I thank God that I saw his arms begin to twitch and immediately realised he wasn't breathing. Wonder if angels like getting wet? It's so awful to watch a child with any kind of illness, such a sweet kid......and that bear has been his constant companion since he was 2 months old....can't you tell????

2 Comments:

At 5/08/2006 10:57:00 AM, Anonymous Anonymous said...

Hope your little boy is doing OK Mandy. I love that pic of him with his little blue bear. We also have little blue bear lover in our house. He is now 13 and "Ted" is now very skinny and very grey, and still goes to bed with his owner each night.

 
At 5/09/2006 08:30:00 PM, Anonymous Anonymous said...

Hi is so cute, sorry to hear all you have to go through, it must be a real worry and a shame for him too, best of luck :)

 

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